For many, a children’s hospice is a place associated with end-of-life care. But at Bluebell Wood Children’s Hospice, support goes far beyond that, extending to young people up to the age of 25. Helping young people like Kaisha transition into adulthood with confidence and independence.

Kaisha has been supported by Bluebell Wood since she was 17. Living with Friedreich’s Ataxia, a progressive neurological condition affecting mobility and coordination, she has faced many challenges. However, with the right support, she has gained independence and is now moving into full adult care.

“During my time at Bluebell Wood they have gone above and beyond with my care. Physiotherapy has helped me a lot, and when my mum passed away, Bluebell Wood was there for me,” says Kaisha. “They’ve encouraged me to do things independently, like taking the bus to Retford or going to the gym. They even helped me use a hoist to enjoy a bath at the hospice, things that gave me a sense of normality and freedom.”

Bluebell Wood provides specialist care for babies, children and young people up to the age of 25, helping them navigate the often-daunting transition from children’s services to adult care. Kaisha admits she was hesitant to join at first, but once she did, she found joy in making others laugh and forming friendships.

“The Youth Group was one of my favourite things because I met people my age, I felt like I fit in. I also got to take part in cooking classes and art and craft sessions.”

Beyond medical care, Bluebell Wood also empowers young people to advocate for themselves and break down misconceptions. Through her social media presence, Kaisha shares her journey to raise awareness about disabilities and challenge the stigma surrounding young people with additional needs.

“I like showing people what I can do,” she says. “It’s about raising awareness and breaking the stereotypes.”

As she moves into adult care, Kaisha is eager to give back to the hospice that has given her so much. “Bluebell Wood means so much to me,” she says. “They’ve helped me during the toughest times in my life, and I want to help them in return by volunteering at events.”

The transition from children’s hospice care to adult services is complex, but Bluebell Wood ensures that no young person is left without the support they need. Rachel, the hospice’s Transition Coordinator, works closely with young people and their families to provide guidance. “Navigating complex pathways for social care, and the difficulties to get housing and healthcare, is challenging, so we make sure every aspect is covered,” she explains. “Our structured transition process, following the three stages of transition helps ensure they get the right support, whether that’s further education, independent living, work or ongoing healthcare.”

Kaisha says this support has been life changing. “I would have been lost without the hospice,” she admits.

“Rachel always checks in and makes sure I have what I need. Rachel always advocates for me and has helped me massively to come out of my shell. I am sad to leave Bluebell Wood, I have been supported by them for eight years, but having Rachel and the care team’s support means I feel confident for the next steps in my care journey.”

Bluebell Wood helped Kaisha celebrate her 25th birthday. “If it wasn’t for the hospice, I would have only had one birthday card from my aunt,” she says. “But Bluebell made sure I had a wonderful day. The care team have been there for me through everything.”

Among her many fond memories at Bluebell Wood, one stands out, “One time, when I was staying over, it snowed unexpectedly, and I went into the garden to make snow angels. It was such a lovely surprise.” Beyond these cherished moments, Kaisha also enjoys the simple pleasures in life, like going to her local Wetherspoons for food. She is also a big fan of the hospice chef John, and his famous cheese and ham sandwiches, which she loves. These small but meaningful experiences have made her time at Bluebell Wood even more special.

Rachel says, “Kaisha has full capacity, she has the right to live independently, and I am ensuring she gets the right support. I take huge pride in supporting people's transition after Bluebell Wood.” Kaisha’s story is a powerful reminder that young people with disabilities can lead independent lives with the right support. She is now looking forward to the future, filled with confidence and determination, knowing that Bluebell Wood will always be part of her journey.